From here, things are looking much better. Yes, that is easy for me to say, but I hope it's at least a bit encouraging none the less.

I'm hoping you're finding yourself riding nicer waves these days,,, or at least today. Right now. Now is all we've really got anyhow!

Do you feel a bit better? Can you recognize any progress you've made since your OP? We really want to know!

I have a close, lifelong friend who I keep in fairly close touch with despite a couple time zones and 1500mi between us. Not long after I relocated he had a brain aneurysm. He'd built machines, racecars, houses, and gained journeyman status and abilities in 4 trades, and made 2 babies before this. About 20 years have passed, (and a second aneurysm about 5 years after the first, pretty much resetting his recovery to 0 at that point) and he's still great to talk with. He's working on getting his driver's license now. He's got what you've got: tenacity and hope.

There's more people than you realize out here, wishing you the very best, and in our own individual ways rooting for you. (Ok, call that a carrot)

 

It is going to be hard. I am hoping to get insurance on Nov.1 AKA open enrollment for Obamacare. Al my paralyzed parts have a sense ot touch and make intricate movement not under my control when spasming. l My hope is with more medical intervention I can wake these dead parts up. I'm already working my butt off they are going to have meat on them and are staying flexible. It huts but I can live with that. Other than that I am my own worst enemy emotionally especially with my meltdowns. My brothers suicide taught me that is never an option.given that basic fact my only choice is to continue as if I will recover. even on those days I feel otherwise.Like I said I have truly great friends. getting my through the physical rough patches(like getting in the wheelchair).some thing I can not do myself.

I've said this before I am not ready to retire. but I may have to. we';;ll see. I don't know if my writing has value. but I''ll practice on this site.Maybe I can have decent job someday

 

You have come along a long way and are doing fine. Keeping busy will help avoid depression. Try maybe learning something new, for example a type of programming or an instrument like harmonica. I have a friend my age (67) who just started learning the saxophone. He sounds terrible but he stays busy with the thing. Point here being do things, learn things and avoid sinking into being depressed. Like I mentioned, you have come a long way.

Ron

 

It is going to be hard. I am hoping to get insurance on Nov.1 AKA open enrollment for Obamacare. Al my paralyzed parts have a sense ot touch and make intricate movement not under my control when spasming. l My hope is with more medical intervention I can wake these dead parts up. I'm already working my butt off they are going to have meat on them and are staying flexible. It huts but I can live with that. Other than that I am my own worst enemy emotionally especially with my meltdowns. My brothers suicide taught me that is never an option.given that basic fact my only choice is to continue as if I will recover. even on those days I feel otherwise.Like I said I have truly great friends. getting my through the physical rough patches(like getting in the wheelchair).some thing I can not do myself.

I've said this before I am not ready to retire. but I may have to. we';;ll see. I don't know if my writing has value. but I''ll practice on this site.Maybe I can have decent job someday

You should be able to collect SSI (social security disability insurance - for income) and Medicare for health insurance.

 

You should be able to collect SSI (social security disability insurance - for income) and Medicare for health insurance.

Yeah, I was wondering about that.

Ron

 

My hope is with more medical intervention I can wake these dead parts up.

Have you had contact with a genuine physical therapist? My daughter happens to be in training as a doctor of PT, at a cutting edge program being rolled out in clinics at Ft. Hood. It's clear from talking to her that most physicians don't have the specialized training she has, just as they usually know very little about nutrition and other specialized topics. She's had intense training on nerve conduction, muscle action and all the stuff that you can imagine being important for a PT. That and more.

I would think that your situation calls for input from a person with that level of specialized training. This may require a lot of self-advocacy, to get referred to a specialist. One thing I see in my (very limited) contact with medical treatment, a lot depends on how well you fight for yourself. I feel sorry for those too weak to fight for themselves, without friends and family to step in for them.

 

Have you had contact with a genuine physical therapist? My daughter happens to be in training as a doctor of PT, at a cutting edge program being rolled out in clinics at Ft. Hood. It's clear from talking to her that most physicians don't have the specialized training she has, just as they usually know very little about nutrition and other specialized topics. She's had intense training on nerve conduction, muscle action and all the stuff that you can imagine being important for a PT. That and more.

I would think that your situation calls for input from a person with that level of specialized training. This may require a lot of self-advocacy, to get referred to a specialist. One thing I see in my (very limited) contact with medical treatment, a lot depends on how well you fight for yourself. I feel sorry for those too weak to fight for themselves, without friends and family to step in for them.

I have had physical therapy twice. The first time I had a "bone breaker". Not very skilled in the art. When I realized what she was doing wrong it inspired me to do it right myself with fairly quick positive results.

The second time I had a good therapist. She understood my "lets get it fixed right mentality" created by the first therapist. Her most important skill was telling me what I was not allowed to do as well as telling me what I needed to do to recover quickly.

Summary: Get a therapist as soon as you can and make sure that the therapy is working. Stay involved to make that happen.

 

Physical therapist? Been there and done that twice following shoulder surgeries. I refereed to her as the Mistress of Pain. Seriously I had some very good ones and although it hurt I did resume full travel in both of my arms. I grimaced and did what I was told to do and it worked.

Ron

 

Physical therapist? Been there and done that twice following shoulder surgeries. I refereed to her as the Mistress of Pain. Seriously I had some very good ones and although it hurt I did resume full travel in both of my arms. I grimaced and did what I was told to do and it worked.

Ron

I find it interesting how the profession of chiropractors could have evolved into physical therapy but, instead, they continue to make sales pitches that include the nonspecific stresses on your skeleton caused by your body passing through your mothers birth canal. And how this stress has caused us to become asymmetric And in desperate need of frequent “alignment”. I thought this went away 30-years ago. My wife just went for a “free” alignment session and got that very same pitch they gave my father so many years ago.

I don’t know any physical therapists that have to advertise. Even the bad ones are busy!

PS: free was in quotes because they give you the hard sell to sign up for 52 sessions with a signed contract. “Oh, don’t you feel much better after your alignment? Just sign right here and you can feel this good every week”.

 

They do align, they align your pocketbook with their checking account.

Ron

 

They do align, they align your pocketbook with their checking account.

Ron

I was gonna say "they align your coins with their piggy bank's slot" ... but you just said practically the same thing ...

 

I was gonna say "they align your coins with their piggy bank's slot" ... but you just said practically the same thing ...

I guess the end result is the same.

Ron

 

I have major vertabral damage, and am seeing PTs 2x week prescribed as part of an on-the-job injury treatment. The clinic I'm going to is nuts about that same old alignment stuff.

Wendy, we're hoping to have you join us, bitching about our PTs!

 

I find it interesting how the profession of chiropractors could have evolved into physical therapy but, instead, they continue to make sales pitches ...

I'm seeing what I consider the best chiropractor I've ever encountered. He treats the U.S. Olympic team for instance, and is a world class athlete himself. And yet, he's very much a non-science type. He won't even use a microwave oven and promotes a number of 'therapies' that I believe are pure hokum, like using one of those electrodes on the fingers to assess which nutrients are deficient in your body. Chiropractors prey on the conspiracy mentality, that science and technology is out to kill us. There is some truth in their arguments but they're never going to advance their own technology with that mentality.

 

I'll add that the fantasy of chiropractic is that a few seconds of treatment can have profound and long lasting impacts. I'd say that's only true in the most severe situation where you've thrown out your back and it needs to be put back.

The real advantage of adjustment comes from therapy you do yourself for extended times every day, things like cervical traction and using a wobble disk to exercise your lower back.

 

Fell out of my chair exercising yesterday. It was embarrassing. no damage, Pride goth before the fall and all that. Though I do find myself a bit body sore. All the paralyzed parts have a sense of touch if no muscle control. Lately I find myself in a very dark place. I will not self harm, If I found myself dying it would not be a tragedy. Maybe if I don't wake up?

 

Fell out of my chair exercising yesterday. It was embarrassing. no damage, Pride goth before the fall and all that. Though I do find myself a bit body sore. All the paralyzed parts have a sense of touch if no muscle control. Lately I find myself in a very dark place. I will not self harm, If I found myself dying it would not be a tragedy. Maybe if I don't wake up?

Nerves are strange. MS patients often have a sense of touch but no motor control. One guy I knew had motor control on one side and touch on the other side (but no motor control). He also had no sense of heat on either hand and burnt his fingers often while smoking. He quit smoking for fear of burning his house down.

 

All the paralyzed parts have a sense of touch if no muscle control.

My PT daughter reports that "The parts of the brain that control motor function are separate from those that perceive sensation, but they’re not too far apart. I would say if it had been some time since the stroke where the patient hadn’t had sensation and all of a sudden they did that could be a positive sign."

 

Nerves are strange. MS patients often have a sense of touch but no motor control. One guy I knew had motor control on one side and touch on the other side (but no motor control). He also had no sense of heat on either hand and burnt his fingers often while smoking. He quit smoking for fear of burning his house down.

Just smoking is wrong on so many levels. I'm trying to talk my daughter into vaping. Which is still not good but better than the alternative IMO.

 

Just smoking is wrong on so many levels. I'm trying to talk my daughter into vaping. Which is still not good but better than the alternative IMO.

For me it was Chantix which ended a 50 year smoking period. I do miss the vivid dreams and that was my only side effect.